Through an ethnographic case study of two dying individuals, I argue that terminally ill people can be subjected to disability discrimination as it is understood within the dominant theoretical framework of disability rights: the social model of disability. A basis for rights for terminally ill people can be found in the disability rights movement. The creation of such rights should be understood as complementary to, but distinct from, existing initiatives to provide dying people with social benefits. Strategies to promote the involvement of siblings of people with intellectual disabilities as advocates are discussed and it is expected that more siblings of people with intellectual disabilities will be supported to have a higher level of involvement in advocacy.įrom Disability Rights to the Rights of the Dying (and Back Againĭirectory of Open Access Journals (Sweden)įull Text Available This article argues for civil rights for dying people. All of the participants expressed that they needed support from service providers when they tried to function as the sibling advocates. Findings revealed that the six participants were reactive in the process of taking up the caregiver responsibility and they performed three functions: to advocate for more service provision, to improve service quality, and to facilitate communication between individual service units and family members of people with intellectual disabilities.

Data were analyzed using a constant comparative method and content analysis. A qualitative approach was adopted and six sibling advocates of people with intellectual disabilities from one non-government organization were interviewed.

The aim of this study was to examine the experience of the first generation of sibling advocates in Hong Kong. Sibling advocates of people with intellectual disabilities.

Plausible Deniability by Shanna Lauffey